Supporting a child/youth with pediatric advance care planning
A child’s voice and preferences are vital to partnered decision making, as well as helps a child feel valued and empowered.
Children have the right to be supported:
- To understand to the best of their ability their condition and care
- To know what to expect and anticipate
- To share their preferences and participate in decisions related to their health
- To be involved in important decisions in meaningful ways, even when they are not the primary decision maker
- Involving youth and children in their care can help them cope better with treatments and build trust with a healthcare environment and the teams supporting their health and care.
- To meet needs, we need to know what those needs are.
Our team will listen to your child’s thoughts, feelings, and wishes, and involve them in decision-making as much as possible, taking into account their age, preference for participation and understanding. We work alongside a family and child to ensure care aligns with hopes, values and goals across their illness journey.
Participation supports children
- Participation provides ways to:
- Help children understand the situation
- Support children to explore their preferences
- Support children to take part in conversations
- Respect children and honour their needs
- Participation supports children’s adjustment to the situation, builds confidence, a sense of control, cooperation with treatments, and manages anxiety
- Participation provides an opportunity to learn and grow with their care decisions
- Participation with conversations provides the opportunity for children to process information and time to consider questions for the next discussion
Child and family resources
- BCCH Partnership Guide – BC Children’s Hospital, Ethics Department, Partnership Guide
- Me and my illness activity book
- My life and their illness activity book
- Living my culture
- Talking with your child